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Twin States Network is a small non-profit
organization whose mission is to provide support services to
families and children infected or affected by HIV and Hepatitis C in
In early 2000, the
For several years the camp was fully funded by the Children
Affected by AIDS Foundation.
Unfortunately in 2005 CAAF no longer had funds to continue to
fund most of the HIV/AIDS camps around the country, and in 2009 CAAF
stopped funding camps altogether.
Twin States Network has continued to offer this camp for 15-25
children between the ages of 8 and 17.
When the children asked to extend the camp from three to four
days, Twin States Network found a way to do that.
Sadly, in 2010 Twin States Network has been unable to raise any
funds to run the camp.
Most of our reliable funders were seriously impacted by the economic
downturn.
All the children who attend Kids
Camp live in families that are below 200% of poverty – that means a
family of four is living on less than $22,000 a year.
In addition, many live in homes that have become extremely
disorganized as a result of HIV, stigma and periodic incapacity of
the parents.
The following is an excerpt from a letter from one of the Kids Camp
Counselors.
Being responsible for a cabin of girls ranging in age from 9-14 was
an obligation I didn’t take lightly. As we drifted off to sleep, the
conversation in the dark echoed with the tragedy of kids and HIV.
One girl spoke of her mother and how sick she was all the
time, leaving her to care for her siblings.
Another talked about her own need for frequent
hospitalization and how her meds made her so very sick.
They sought reassurance, extra hugs, hand-holding, love.
They had to walk with me, eat with me, swim with me, talk
with me, have my full attention all the time.
Even the older children still needed to sleep with ragged
blankets and tattered stuffed animals because it made them feel
safe. Two of them
continued to suck their thumbs in order to get to sleep and swore
their cabin-mates to secrecy.
Within the first 36 hours it was apparent how important this
oasis was to the group.
Many were here for repeat visits.
They were comfortable with one another and didn’t need to
censor expression of their needs and wants.
They laughed and cried with equal gusto.
They got mad when things didn’t go right. In other words,
they got to be regular kids with regular issues, rather than ‘those’
kids dealing with HIV.
Likewise, they did not receive special treatment because of their
HIV status, an important equalizer.
They received help in developing coping skills.
They were encouraged to talk out problems, share feelings.
Children who have attended say that they look forward to the camp
each year. Some statements from last year’s evaluations show that
children come to Kids Camp “because it helps get rid of problems on
their mind,” and “that there is (sic) other people in the world that
is going through the same thing.” “I come to Kids Camp,” wrote
another, “because my mom is HIV positive….there are people out there
like you that live or have HIV/AIDS…Just because we have a family
member or have HIV/AIDS … doesn’t mean we are different from others
and so we can have friends to talk about what we’re thinking.”